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1. What is CFS-ME ?
Perhaps you are here to find out and avoid acquiring CFS-ME.
You may not know anyone who has it and just want good health.
You will find many options here to assist you in maintaining health.
Here is a short exercise to help you empathize with those who have CFS-ME.
A short exercise for the healthy person.
You have nothing to prove, only something to become aware of.
If you are macho, proud, or aggressive, you are likely too weak.
It is a simple exercise. If you feel too strained, STOP.
Try and do this for an hour.
Persons with CFS-ME live this 24/7.
They don't have a Choice, as you do.
Every time you make any physical exertion,
--- hold your breathe.
From before you begin, until you end, HOLD your breathe!
Moving your foot, hand, turning your head, moving ....
Talking will have to be allowed. Seeing and hearing are OK.
A MAJOR difficulty that people with CFS-ME have is in not getting oxygen INTO their blood and successfully delivering it to their cells. That includes muscles and organs. There is seldom enough assimilated, yet, their bodies do not indicate carbon dioxide toxicity. That, would strongly encourage them to hyperventilate. See how YOU feel during the exercise. YOU will be prompted to breathe. But what if you were not. Can you stay relaxed while you are holding your breathe and resist panic and acting out?
People with CFS-ME often
DO something healthy people can't do.
They remain calm while their cells are starving for energy.
They FEEL and ARE physically weak, as you will become if you continue to hold your breath every time you make any movements. Don't FORCE yourself to hold your breath too long. Don't risk getting dizzy, nauseous, or depressed ... which sometimes DOES happen to people with CFS-ME. Many doctors and friends don't understand this and may not believe their assertions. Not believing it, doesn't change the Reality. It just adds frustration and conflict.
If you do not have CFS-ME, you really don't want to get it.
If you DO have CFS-ME, you want to get over it, Recover.
Recovery, long-term recovery, works best with understanding.
You can find a lot of that in this material.
Then, you can determine which Options are relevant, for YOU.
Following those options will have a high potential to pull you out of that quicksand. For the others of you, it may alert you to how to determine WHERE the quicksand is, WHAT it looks like, and how to AVOID it.
CFS-ME is a complex package of health weakening factors.
There is a great amount of confusion about what it is and is not.
With no accepted definition, there are numerous diagnostic approaches.
Consequently, there are many Protocols for treating it, each relevant for some.
Many researchers have a commitment to one or several core factors.
This narrow focus is largely damanded by institutionalized science.
Some specialist practitioners focus on the simplistic; others, on the complex.
Disability and health insurance benefits are undependable; largely absent.
Some of the popular phrases used to NAME this state of illness include these:
Chronic Fatigue Syndrome (CFS)
Fibromyalgia Syndrome (FM)
Multiple Chemical Sensitivity (MCS)
Myalgic Encephalomyelitis (ME)
In general terms, the condition has been known for almost 30 years in North America as "Chronic Fatigue Syndrome." While this phrase has unfortunately been frequently used by professional yet ignorant and abusive persons to minimize and distort the perceived reality of this PACKAGE of illnesses, it remains the phrase used for the longest period of time and with the widest collection of allied research. The rest of the world has consistently know the same collection by the more accurate, yet more cumbersome, phrase: myalgic encephalomyelitus. Since 2000, and before, there have been activism to change the name to something which is friendly and more accurate in description. The point of perception you will find repeatedly emphasized in these writings is fundamentally different.
The findings I LIVED with and assisted others with asserts that whatever one may call this PACKAGE of illnesses, there are potentially 1000 or more variations. These variations in composition can, and usually will, change throughout the presence of the condition. As such, there is no possibility of assigning a politically correct term or phrase to the condition which the people who have it will identify with, and, be accurate. Sooner, and often later, those who acquire this Package of illnesses will become aware of the terms CFS or ME, and, eventually, both. They may not be pleased or in favor of either of these terms, but they will know what the terms are referring to. I am not prepared, and would find little practical benefit in creating 500 new terms to confuse the issue of Recovery from the condition. CFS-ME will be used as the target phrase here.
Patients often defend a narrow definition of their own illness in an effort to distinguish what they are currently experiencing from what others may have in their symptom list. What I am presenting here, from my own experience and recovery, and that of my wife, is that it is NOT a singular illness nor derived from a singular instigating factor. Rather, it is a Package of illnesses. The components in that Package may change during the illness. More may be added to the total. Some components may be addressed, resolved, or eliminated through treatments and supplements, over time. That may reduce the total remaining, either temporarily, or for the longer term. As the total number of illness conditions present vary, the combination of symptoms expressed may also change. Some may lessen. Others may increase. New ones may begin. Old ones may seem to disappear, as if healing has taken place.
Education can prepare you for Reality.
Frequently, we are fed fantasy based upon a lack of self awareness, an absence of health and physical dynamics and interactivity, a denial of social and political power complications, and a relationship and communication ideal based upon the intellectually distracted romantic portrayals of life in movies and novels. The more you want and believe the idealistic fantasies, the more you are insulated from learning HOW to cope with reality. By coping poorly, reality worsens, and we find it easier to cling to what COULD be rather than be part of what IS. With CFS-ME, reality cannot be escaped from unless you are rich enough to afford extravance, passive enough to build co-dependencies, selfish enough to commit suicide, or defeated enough to die. Time for a CHANGE.
The TOOLS on these pages, and the Resources are here to afford you with Options and Choices which, with some mentoring and some skill building on YOUR part, you can fashion into a RECOVERY Protocol that will work for YOU. As much as 40% of the destructive stress influencing persons with CFS-ME is generated by the misinformation and lack of understanding to which one is exposed. In other words, the civilization we live in is toxic to many of us.
You will be able to face reality without it crushing you.
You will be able to understand the social structures and beliefs and have the choice to accept them and encourage their change. Fighting against abuses only strengthes the abuser and makes them more Resistant to the changes that would make YOUR recovery far easier and faster. Those changes might even prevent others from acquiring this elastic and resilient Package of health destroyers.
2. What are the usual Symptoms ?
First defined in 1959, it may have been present as far back as 1918.
It has been redefined frequently since to satisfy either new findings, institutional assumptions, insurance concerns, governmental spending, pharmaceutical and association lobbying, patient group activism, cultural status quo expectations, and other inputs. It is usually considered to include many, though rarely all, of the following.
Diagnosis is complicated by the Reality that many doctors and therapists are unfamiliar with the tests and the laboratories which can provide accurate and relevant results. Frequently, I was given tests that were irrelevant, because the doctor did not confirm basic health history. A test for testosterone levels is nulified if one has taken ANY testosterone supplements, or herbs or foods which elevate testosterone levels, within a YEAR of the test! Your body can store up as much as an annual supply. Similar considerations can influence many test results.
- disabling fatigue
- loss of self-esteem
- myalgia
- irritability
- muscle weakness
- mental fog/distraction
- tender lymph nodes
- low or absent fever (co-symptoms)
- headache (any of many forms)
- paresis (weakness to partial paralysis)
- sore throat, sore gums, white spots
- grief, depression, chronic disappointment
- loss of libido, erectile dysfunction, apathy
- pituitary and hypothalamic dysfunction
- sleep disturbances
- multiple infections
- no mortality, directly
George Hylak, 1998 went so far as to associate ALL and any of the following as variants of the same derivative: mycoplasma infections:
chronic fatigue immune dysfunction syndrome, "idiopathic" cd4 positive t-lymphocytopenia (aka HIV-negative AIDS), auto-immune disorders (lupus, MS and ALS), epstein-barr virus (chronic), CMV, HHV-6, sarcoidosis, stevens-johnson syndrome, meningitis, acquired immune deficiency syndrome, crohns disease, cancers, lymphomas, fibromyalgia, arthritis, attention deficit disorder, creutzfeldt-jakob disease, encephalopathies, pelvic inflammatory disease, allergies, asthma, sjogren's syndrome, somatization, chronic mononucleosis, scleroderma, interstitial cytitis, and alzheimers.
Mr Hylak has chosen to have this earlier and extensive article removed from circulation, yet, you can find ALL of these illness conditions linked to CFS-ME by one or many other authors in more recent research. We should continue to thank him for his earlier efforts.
Diagnosis within a Government mandated Health Care System can be made impossible. In the Province of British Columbia, Canada, between the years 2004 and 2007, I was repeatedly told by as many different doctors as I could see in my local area .. that they, by medical-government regulation, could only treat/ask about ONE symptom at a time. Whatever they presumed that one (simple) symptom to mean, it ALWAYS proved to be of no problem (as anyone with a Grade 3 public school education could expect.
As General Practitioner appointment times were reduced from a mandated 20 minutes to 10 minutes, anything beyond a quick prescription of drugs or a simple test, proved unacceptable to the government regulations .. on penalty to the career of the doctor. Add to this, as volunteered, surprisingly, by 3 doctors that I went to (only possible because I had to move frequently), the TESTS which doctors were ALLOWED to order, had to cost less than $20.00 --- Most of the tests required for the sincere treatment of a person with CFS-ME can cost as high as $100 each.
3. What Composition of CFS-ME ?
My experience and discoveries indicate that a PACKAGE of illness conditions are present in everyone with CFS-ME. Further the Package is always composed of 4 to 6 of the below possibilities. This selection of possibilities may change as the person effects recovery from one or another, or, finds a temporary "balance" for same. Often, reducing the "load" leads to greater energies being made available to the remaining, and sometimes added remission factors, so they can come to greater domination and prominance. The challenge is to reduce the strength of the Package, with the understanding that reducing one, may empower another.
- Adrenal Fatigue
- Heart function imbalance (Low)
- Energy Blocks (Addictive patterns/beliefs)
- Neurotoxins (Virus/Bacteria/Fungi/Worms/)
- Parasitic overload (Virus/Bacteria/Fungi/Worms/ )
- Neurotoxins (Fish/Insects)
- Hormonal imbalances
- Mycoplasma infections
- Thyroid, hypo
- Structural misalignment
- Heavy metals toxicity
- Imprinting that is Severe & Negative
- Gene damage (singular or multiple)
A last and critical step to recovery WILL be present for anyone who has had CFS-ME for longer than 3 to 6 months, with the stress on "3". This step is of little value, if you have not defined WHAT the composition of YOUR reality is, and haven't addressed any of those. There are no shortcuts. Miracles work for those who DO their part!
4. Who gets CFS-ME ?
Can CFS-ME be acquired by anyone?
You may find otherwise. What I found is that most people diagnosed with CFS-ME share many of the following characteristics. As over 95% of North Americans have energy blocks, the subset here simply have energy blocks which endow them with a higher than average sense of motivation, or, need to achieve.
About 20% of North Americans express this need in their actions and attitudes, regardless of their stated intentions. This tends to put them into job and social situations in which they interact with more, rather than less, numbers of people. This also gives them the tendency to take greater risks, usually viewed by them as something that brings them excitement (to favor internal reward), or, challenge (to favor external reward), or, recognition (social power through sacrifice and involvement).
Persons who are/have
- highly motivated (perfectionism, other addictions)
- overactive (injuries/stings/cuts/concussions)
- low blood pressure, long-term to life long
- gregarious, interact with many people
- HHV-6A infections
- heavy metal toxicity (mercury amalgams)
- heavy metal toxicity (lead paint/soil/contaminants)
- heavy metal toxicity (aluminum utensils/laminate dust/..)
- malnutrition (high sugars, high fats, additives)
The chronic low blood pressure factor, has yet to have any one or several experience forms or originating factors associated with it. Perhaps 98% of those with CFS-ME possess this characteristic. Without it, they would die of heart attack or stroke at a much earlier age than they do. In some ways, this, and some forms of energy blocks, enable them to continue their life experiences far beyond the strength of the Reptilian Structures of many other persons. This ability to survive physical traumas and emotional turmoil, presupposes them to multiple injuries, chronic infections, adrenal fatigue, and, much higher than average coping skills and commitment. That is, their apparent strengths may doom them to the hell of CFS-ME, while others die under much less stress and fewer health diminishing factors.
Paul Cheney Profile
Possible sources of chronic low blood pressure:
- Premature birth
- intra-gestational emotional turmoil
- mothers with a history of depression
- viral infection early in life, conception to 3 months
Heavy metal toxicities increase in cultures which exchange hunting and gathering and/or agriculture .. for industrialized agriculture and manufacturing. The latter typically add immense exposures of toxins to the environment, to the workplace, and to the food supply. In a subversion of institutional power, cultures often ENCOURAGE practices which make heavy metal poisoning endemic, often, until the culture fails.
The Romans encouraged drinking wine from leaded cups.
The prosperous of the Middle Ages Europe encouraged the use of white (leaded) cosmetics to cover smallpox and other skin blemishes. European colonists of the Americas encouraged the use of tobacco products. Their encouragement of coffee, to replace teas and water as daily beverage .. weakened adrenal function, stressed kidneys, reduced elimination of wastes. Recorded human history shows a repetition of the weakness of human rationality to support pseudo-scientific associations. We are weak to the suggestion that something which is New, Refined, Technical, Expensive, and necessarily, in the beginning, the privileged option of the rich and powerful, is both good for our health, and, an indication of OUR worth. It tends to be an example of our insecurities, and, a disadvantage to our health.
The use of mercury amalgam dental fixtures has led to the long documented increasing presence of immune deficiency illnesses which particularly plague North Americans, as the rest of the world has learned to act on the wealth of research revealing the dangers of its use. The use of aluminum utensils was advocated during the 1950s in North America. The reckless use of mercury-based insecticides and fungicides, and of phenol based bactericides --- since the 1940s and before, has fouled the environment (soil and water) and our bodies. Are we so surprised that our public health care system is so in denial of what it cannot adequately diagnose and treat with its historical simplistic services of fast and dramatic cures largely based upon error and good luck. As many as 40% of the North American population is experiencing the influence of chronic heavy metal toxicity from one or more source metals at any one time.
As WE allow our families and cultures to create more and more stressed lifestyles and environments, and, as we fail to recognize the health issues we have and deny the means to effectively diagnose and treat them, more and more people will be withdrawn from the producing portion of society to become consumers of social services, policing and crime, and chronic health care requirement. Governing costs will continue to rise while numbers of taxpayers will fall. How will it end?
5. Why do so few Recover
There are a high number of severe limiting factors which encourage a REALISTIC response of depression, despair, self-hatred, and fear. As if the impact of the symptoms was not enough, add a generous dose of the following to the equation.
- abandonment by the health care system
- abandonment by the culture/status quo
- abandonment by spouse and family
- inability to exercise in any regular manner
- inability to sustain an income/job
- disqualification from most insurance plans
- an independent nature resistant to humility
- symptoms that induce weakness & loss of self-esteem
- symptoms that mentally distract & lessen research
- symptoms that frustrate hearing & thinking
- symptoms that require complex nutrition
- living in poverty or the threat of
- living homeless or the threat of
- no financial support for advocates
- no professional respect for researchers
- a high level of poverty, suicide
The fact that so few have a GENERAL Understanding of CFS-ME, and you may be able to see the possibility for this to become a pandemic amongst the FEW who have the Most to offer constructively to the culture. No longer do we have to send our most educated, motivated, self-disciplined, healthy men and women to war to slow the rate of innovation and creativity ... which has endangered the status quo of the Powerful, Rich, and Priveleged. All we have to do now is to allow the cultural "benefits" we have given them to melt them away, like acid on a sugar cube.
6. Why isn't there a Recovery Protocol ?
There are actually MANY protocols for recovery.
The limiting reality is that NONE of those protocols effect a long-term recovery for many people who have CFS-ME. That is not a despairing thought. It is a Reality. The truth, as I know it, is that most of the protocols founded and offered to the public reject the fundamental essence of the "illness" ... that it is a Package of Illnesses and that Package is composed of an individualized selection of illnesses from a larger list of highly specific possibilities.
Some Protocols are introduced to you in this section.
One MAY be quite effective for you. It may not be effective for your spouse or others you know who also have the symptoms of CFS-ME. It may not be effective for you, unless, you sum it to other protocols or other factors noted in this section or on this website.
The founders of these protocols had good intentions.
Most have either lived directly with a version of CFS-ME, or, haved sought out, in great urgency, for something to assist in the Recovery of someone they value very highly in their life. They have found a Pathway which is effective for that particular FORM of CFS-ME. The shortcoming is that many of these founders have Assumed that there is only the Form they have been focused on. This is so often the shortcoming, even the disaster, of many Good Intentions.
Good Intentions have resulted in the deaths of millions of people on the Earth every year in the past century. Often, it is the good intention of the colonizer to bring wealth, in some form, to their own citizens ... with a justification that doing so will provide benefits to the colonized also. Homes are invaded, freedoms are trashed, health is devastated, families are broken, people are murdered. It often is covered by the words "invasion", "democratizing", "liberating", "commercializing", "educating", "rescuing." Unfortunately, it usually means that force is used against a person for a "good" they never requested. It has been assumed, by the persons in authority, the Powerful, that the Way they have established to communicate, work, eat, live, believe .. MUST be good for all, because they believe it is good for themselves.
Babies in "underprivileged" countries died of diarrhea, for decades, because they were graced with "foreign aid" from "Good" nations, and especially from church charities, with, milk powder. The well intentioned people never considered, for decades, and hundreds of millions of deaths, that the Gift they were giving had the effect of a poison. They saw, and refused to believe. What they were ignorant of was the Reality that persons in these countries did NOT live in a culture which commercialized cows and supported a milk diet. The people lacked the lactobascillus bacteria in their gut required to metabolize the milk that was now introduced by the "foreigners". In some regions, the local diet included the use of herbs which safeguarded the population from parasitic pandemics. These same spices eliminated any lactobascillus bacteria that might be introduced.
The Constructive Solution is to determine the REALITY.
IF it is Simple, treatment may be simple.
IF it is Complex, treatment may be complex, or, a variety of simple and complex options.
7. How can I avoid getting CFS-ME
To have a high degree of protection from CFS-ME you would have to lead an isolated, low stress, low requirement lifestyle with no or minimal contact with any health care system, OR, you would have to impose MANY restrictions upon your lifestyle. Otherwise, be prepared with this information in case you acquire it, as a surprise, like most other patients do.
Do not interact with other people:
- reduced likelihood of building energy blocks
- live in a tropical climate with low housing requirements
- grow, harvest, preserve, and prepare your own food
- eat only fresh, raw vegetables and fruits
- only eat meat and fish which has been cooked
- never eat anything taken from an ocean
- die from infected cuts, teeth, or contaminated food
- maintain a joy and respect for your surroundings
OR
Persons who live in villages, towns, cities ..
- restrict contact to others with excellent coping skills
- balance your personal, social, business, & intimate times
- exercise daily and moderate your surrounding temperature
- choose to have positive attitudes and respectful behaviors
- ensure you have the best of dental health & cleaning
- eat a diet restricted to foods best for blood type & location
- filter/treat all water used and air breathed
- ensure a balanced access to full spectrum light(ing)
- practice Reverence and Gratitude frequently
- eliminate access to media which is abusive
AND
Abusive Media:
This is term is used to designate books, internet, movies, music, photos, advertisements, and any other form of mass produced or widely circulated or available information which encourages co-dependency,
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